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If you or someone you know has been diagnosed with an MPD, you need support to cope with these rare, invisible diseases. Support can come from loved ones, friends and members of the medical community.

Need one-on-one support? Find our about our buddy (peer support) programme by emailing us at info@mpd-support.co.uk (please mention peer support in the title line).

Want to chat with MPD friends? If you'd like to chat online with others with MPDs, please try MPDchat. MPDchat is a gmail group where cyber-friends, who are connected by MPDs, can share troubles, swop information and tell their stories. Posts are generally relevant to MPDs but connected issues such as fatigue, pain relief and depression often arise, along with a bit of general chat. We aim to have a happy group where people feel welcome and respected. On our main web site are MPD links, personal experiences of diagnosis and treatment, and a constantly updated database of articles on polycythemia vera, essential thrombocythemia, myelofibrosis and other relevant issues. Posts can be delivered to your inbox as they are sent, or via a Daily Digest, or you can read all the discussions on the web site.

Want to read more about emotional concerns? Our website can give you an additional source of support. You can use it to increase your knowledge, to meet patients in similar circumstances and to make the best decisions for your needs.
       
We offer several articles on the emotional impact of MPDs. These articles are contributed by Dr Nicky Veronica Thomas, a Consultant Health Psychologist who often works with MPD patients, and Helen W Wong, who recently completed her MSc in Health Psychology and has researched the emotional impact of living MPDs. Please click on the following links to read more about living and coping with these disorders...you will need to scroll down the page...

Please start reading here: The emotional impact of living with an MPD

Continue on these pages:

The invisible nature of chronic Illness
How stress affects our health
Our thoughts about MPDs...and how they affect our behaviour
Communicating with family and friends
Talking things over with your doctor

Coping and taking control when you have a chronic illness

Chronic Illness Lecture - Sept '04

You may also want to link to:

Patients' stories in their own words