Many women with a myeloproliferative disorder are young adults in their child bearing years. These women face unique challenges as they start families - risks to their own health and their unborn child. The Guy's and St Thomas' NHS Foundation Trust (GSTT) is opening the first UK-wide survey of pregnancy in myeloproliferative disorders in 2010.

Aim of the survey To determine how best to care for young women with MPDs in pregnancy, and to ensure the most successful outcomes for both mother and baby

Who is running the survey The Guy's and St Thomas' Hospital NHS Foundation Trust in London (UK) is running the survey in conjunction with UK-wide Obstetric Surveillance Survey, or UKOSS. MPD Support is lending a hand by helping GSTT to publicise this survey.

Can I participate? If you have a myeloproliferative disorder and are pregnant you can participate by filling out the form below with the name of your haematologist and attending hospital. If suitable your anonymised clinical details may be included in the survey.

Do I need to provide my name? No. The survey will capture anonymous data.

I have some questions You can download the survey information sheet for more details on the survey. Please also feel free to add questions on the form below, or to email MPD Support directly at info@mpd-support.co.uk for more details.